What is the ped-DTC Registry?
The pediatric differentiated thyroid carcinoma (ped-DTC) Registry is a European initiative that collects clinical data on children and adolescents diagnosed with differentiated thyroid carcinoma. Because this type of cancer is rare, no single hospital can gather enough cases to fully understand the disease. By uniting data and expertise across Europe, the registry enables meaningful research, improves clinical care, and supports long-term patient outcomes.
The registry operates within EuRREB – the European Registries for Rare Endocrine and Bone Conditions, ensuring high standards of data quality, privacy, and ethics.
As part of the EuRREB network, the registry brings together experts throughout Europe to harmonize care, drive research, and create a stronger future for patients and families affected by pediatric thyroid cancer.
Discover How the Registry Works
Initiatives leading to the development of the ped-DTC registry
ETA-CRN symposium
During the European Thyroid Association – Cancer Research Network (ETA-CRN) meeting in Copenhagen, the first initiative was launched to establish European collaboration on pediatric differentiated thyroid cancer (ped-DTC).
Publication:
A European survey (Dekker et al.) revealed that national registries for pediatric DTC were scarce, and that care was highly fragmented, with large variation in the number of patients treated per center.
Working group ETA-CRN
Lebbink C.A. et al
The ETA-CRN network established a dedicated working group to develop the first European recommendations for the diagnosis and treatment of pediatric thyroid nodules and DTC.
    
ENDO-ERN / ETA-CRN webinar
On December 15, a joint ENDO-ERN / ETA-CRN webinar was organized to present and discuss the European recommendations for pediatric thyroid nodules and DTC.
Ped-DTC Registry
The ped-DTC registry was initiated with an expert working group through the European Registries for Rare Endocrine and Bone Conditions (EuRREB).
